The holidays are a rough time of year. The cold weather makes my lupus pain worse. We had our first snow the other day, and my bones ached so badly. I wonder sometimes how I’ve dealt with the years of lupus pain. The lupus pain is something I can’t runaway from. Lupus has its way of showing its evil head when you least expect it.
Life with lupus is not something I would wish on anyone. Lupus has taught me how to slow down and I hate every bit of it some days, and other days it teaches me to appreciate life. My life has changed tremendously because of lupus. I can’t ever plan too much because I don’t know what to expect and when to expect a lupus flare.
I get upset when people don’t realize what its like to have a normal life with other the obstacles of a chronic illness. I had no idea myself, but I would think I was at least compassionate about it. Some things you don’t understand yourself until you deal with the issues yourself or see someone cope with it.
Friday, December 7, 2007
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2 comments:
I don't think life is really ever the same after you are diagnosed with a chronic condition. So many things I took for granted before mine. Life is such a ride!
P.S. I blog about living with Sarcoma and things of that nature =)
i have lupus too, for 15 years now.
i concluded a while ago that you can't have compassion unless you have suffered, at least a little. i believe i'm a lot mroe compassionate thatn i was before i had lupus.
folks' reactions can be weird, lots of times because it scares them to be around sick people so they don't know how to act.
they're worried it's contagious or that if they open their hearts you'll suck them dry. that's my experience anyway. over the yers i've learned how to tell who i can trust.
i don't reveal that i ahve lupus to anyone until i know them adn they know me. unless i'm in the hospital...
i just don't need to open myself up to be hurt to people who can't handle the info ya know?
it's an old trick, but it works. when you're feeling down, write a gratitude list of 5 things you are grateful for. it helps me change my attitude and mood.
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